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Journal article
Exploring impairments and allied health professional utilisation in people with myasthenia gravis: A cross-sectional study
Journal of clinical neuroscience, Vol.114, pp.9-16
03/06/2023
PMID: 37276742
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Abstract
This study aimed to explore how people with myasthenia gravis experience impairments in vision, dizziness, hearing, and fatigue, and how these relate to balance confidence, community participation, and health-related quality of life. Additionally, this study investigated the utilisation and perception of the allied health role in managing these impairments in the Australian context. Visual and hearing impairments, along with fatigue, were found to be correlated with health-related quality of life and community participation to varying degrees, while visual impairment and dizziness were correlated with balance confidence. Perception and utilisation of allied health professionals was variable; common barriers to better utilisation included participant perception of clinicians having poor knowledge around myasthenia gravis, previous poor experiences with clinicians, uncertainty about the clinicians’ role, and lack of awareness that symptoms were associated with myasthenia gravis. Further research exploring clinicians' knowledge of myasthenia gravis is recommended, along with education for people with the disease about symptoms associated and how to appropriately access care.
Details
- Title
- Exploring impairments and allied health professional utilisation in people with myasthenia gravis: A cross-sectional study
- Creators
- Neve Cavanagh - The University of QueenslandKirstine Shrubsole - Southern Cross UniversityTahlia Alsop - The University of QueenslandKatrina Williams - The University of Queensland
- Publication Details
- Journal of clinical neuroscience, Vol.114, pp.9-16
- Publisher
- Elsevier Ltd
- Number of pages
- 8
- Identifiers
- 991013352973102368
- Academic Unit
- Allied Health and Midwifery; Faculty of Health
- Language
- English
- Resource Type
- Journal article