Exploring impairments and allied health professional utilisation in people with myasthenia gravis: A cross-sectional study

Neve Cavanagh; Kirstine Shrubsole; Tahlia Alsop; Katrina Williams

doi:10.2139/ssrn.4278730

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Exploring impairments and allied health professional utilisation in people with myasthenia gravis: A cross-sectional study

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Exploring impairments and allied health professional utilisation in people with myasthenia gravis: A cross-sectional study

Neve Cavanagh, Kirstine Shrubsole, Tahlia Alsop and Katrina Williams

SSRN Electronic Journal

Elsevier BV

08/2023

DOI: https://doi.org/10.2139/ssrn.4278730

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Abstract

Myasthenia Gravis

HRQoL

health related quality of life

AHP

allied health professionals

General Practitioner

This study aimed to explore how people with myasthenia gravis experience impairments in vision, dizziness, hearing, and fatigue, and how these relate to balance confidence, community participation, and health-related quality of life. Additionally, this study investigated the utilisation and perception of the allied health role in managing these impairments in the Australian context. Visual and hearing impairments, along with fatigue, were found to be correlated with health-related quality of life and community participation to varying degrees, while visual impairment and dizziness were correlated with balance confidence. Perception and utilisation of allied health professionals was variable; common barriers to better utilisation included participant perception of clinicians having poor knowledge around myasthenia gravis, previous poor experiences with clinicians, uncertainty about the clinicians’ role, and lack of awareness that symptoms were associated with myasthenia gravis. Further research exploring clinicians' knowledge of myasthenia gravis is recommended, along with education for people with the disease about symptoms associated and how to appropriately access care.

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Title: Exploring impairments and allied health professional utilisation in people with myasthenia gravis: A cross-sectional study
Creators: Neve Cavanagh - The University of Queensland
Kirstine Shrubsole - Southern Cross University
Tahlia Alsop - The University of Queensland
Katrina Williams - The University of Queensland
Publication Details: SSRN Electronic Journal
Publisher: Elsevier BV
Identifiers: 991013154204202368
Academic Unit: Allied Health and Midwifery; Faculty of Health
Language: English
Resource Type: Preprint

Exploring impairments and allied health professional utilisation in people with myasthenia gravis: A cross-sectional study

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