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Published (Version of record)CC BY V4.0, Open Access
Published (Version of record)CC BY V4.0, Open
Journal article
Validating care and treatment scenarios for measuring decisional conflict regarding future care preferences among older adults
Health expectations : an international journal of public participation in health care and health policy, Vol.27(2), pp.1-11
01/04/2024
PMID: 38450803
Appears in Recent Faculty of Health Publications
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Source: InCites
Abstract
Objective: Decisional conflict is used increasingly as an outcome measure in advance care planning (ACP) studies. When the Decisional Conflict Scale (DCS) is used in anticipatory decision-making contexts, the scale is typically tethered to hypothetical scenarios. This study reports preliminary validation data for hypothetical scenarios relating to life-sustaining treatments and care utilisation to inform their broader use in ACP studies.
Methods: Three hypothetical scenarios were developed by a panel of multidisciplinary researchers, clinicians and community representatives. A convenience sample of 262 older adults were surveyed. Analyses investigated comprehensibility, missing data properties, sample norms, structural, convergent and discriminant validity. Results: Response characteristics suggested that two of the scenarios had adequate comprehensibility and response spread. Missing response rates were unrelated to demographic characteristics. Predicted associations between DCS scores and anxiety (r's = .31-.37, p < .001), and ACP engagement (r's = -.41 to -.37, p < .001) indicated convergent validity.
Conclusion: A substantial proportion of older adults reported clinically significant levels of decisional conflict when responding to a range of hypothetical scenarios about care or treatment. Two scenarios showed acceptable comprehensibility and response characteristics. A third scenario may be suitable following further refinement.
Patient or Public Contribution: The scenarios tested here were designed in collaboration with a community representative and were further piloted with two groups of community members with relevant lived experiences; four people with life-limiting conditions and five current or former care partners.
Details
- Title
- Validating care and treatment scenarios for measuring decisional conflict regarding future care preferences among older adults
- Creators
- Craig Sinclair (Corresponding Author) - University of New South Wales (Australia, Sydney)Ling Yeoh - UNSW SydneyAva Karusoo-Musumeci - Neuroscience Research AustraliaKirsten A. Auret - The University of Western AustraliaJosephine M. Clayton - Northern Sydney Local Health DistrictMichelle Hilgeman - University of AlabamaElizabeth Halcomb - University of WollongongRon Sinclair - The University of AdelaideAngelita Martini - The University of Western AustraliaAnne Meller - South Eastern Sydney Local Health DistrictRebecca Walton - BGLi Wei - Murdoch UniversityTiet‐Hanh Dao‐Tran - The University of QueenslandSusan Kurrle - The University of SydneyTracy Comans - The University of Queensland
- Publication Details
- Health expectations : an international journal of public participation in health care and health policy, Vol.27(2), pp.1-11
- Publisher
- Wiley
- Number of pages
- 11
- Grant note
- This study was funded by a grant from the Australian Government National Health and Medical Research Council (GNT2006283).
- Identifiers
- 991013349272502368
- Copyright
- © 2024 The Authors
- Academic Unit
- Faculty of Health
- Language
- English
- Resource Type
- Journal article