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Understanding the Impact of a Cleft Camp in Aotearoa New Zealand on Sociability, Self-Esteem, and Confidence
Journal article   Open access   Peer reviewed

Understanding the Impact of a Cleft Camp in Aotearoa New Zealand on Sociability, Self-Esteem, and Confidence

Kenny Ardouin, Nicola Stock, Tika Ormond and Phoebe Macrae
The Cleft palate-craniofacial journal, Vol.63(5), pp.1269-1284
05/2026
PMID: 40152062
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Abstract

peers psychosocial adjustment quality of life social support young adults
Objective: Although camps have been offered previously for cleft and craniofacial conditions, few have been evaluated empirically. This study sought to determine whether a community-led camp peer support event led to improved sociability and self-esteem among camp attendees. Design: A mixed methods study was employed. Standardized measures were administered prior to camp, immediately after camp, and 2 weeks after returning home from camp. Qualitative data were collected using focus groups on the final day of camp. Setting: A nationwide 3-day camp in Auckland, New Zealand, organized in partnership between the University of Canterbury and Cleft New Zealand. Participants: Twenty-seven people with cleft aged 10 to 18 attended the camp, of whom, 22 participated in the research study. Main Outcome Measures: The Rosenburg Self-Esteem Scale, Harter Sociability Scale, and Body Image Life Disengagement Questionnaire were analyzed using descriptive statistics and t tests to compare data across timepoints and to normative data. Focus group data were analyzed using conventional content analysis. Results: Many camp participants were already well-adjusted prior to camp and therefore did not demonstrate improvements in quantitative measures over time. Contrastingly, those who scored below the norm at baseline demonstrated significant gains in self-esteem and sociability. Focus group data demonstrated that people felt less isolated, more confident, and more knowledgeable about cleft after attending camp. Conclusions: Residential camps for youth with cleft offer a valuable peer support experience and can result in measurable benefits to young people's sociability and self-esteem, alongside qualitatively reported gains. Offering cleft and craniofacial camps as part of a comprehensive youth program is indicated.

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