Journal article
Treatment Burden for Pediatric Eosinophilic Esophagitis: A Cross-Sectional Survey of Carers
Journal of pediatric psychology, Vol.46(1), pp.100-111
01/2021
PMID: 33216917
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Source: InCites
Abstract
Objective
To investigate treatment burden and impact on health-related quality of life (HRQoL) for children with eosinophilic esophagitis (EoE) and their carers.
Methods
An Australian cross-sectional online survey of carers of children aged 18 years and under with EoE between September 2018 to February 2019.
Results
Of 181 complete responses, more than half of carers experienced reduced HRQoL since their child’s diagnosis. Reported mean out-of-pocket expenditure for healthcare utilization (practitioner visits and treatment) was AUD$3064.3 annually. Backwards stepwise linear regression models showed that reduced ability to manage on income and missing more than one workday in the previous 30 days were significant predictors of lower carer HRQoL. Ability to manage on the current income described as “difficult some of the time,” “difficult all of the time,” and “impossible” were associated with lower child HRQoL. When compared with EoE diagnosis between 13 and 23 months of age, diagnosis between 2 and 4 years was a significant predictor of lowered child HRQoL.
Conclusions
Pediatric EoE in Australia leads to high treatment burden for carers. Changes in carer employment and income manageability can negatively impact carer psychosocial wellbeing. Carers of children with EoE need to be informed about available financial and social support to reduce treatment-related burden and improve the quality of life of both the carer and child.
Details
- Title
- Treatment Burden for Pediatric Eosinophilic Esophagitis: A Cross-Sectional Survey of Carers
- Creators
- Nicole Hannan - Griffith UniversitySara S. McMillan - Griffith UniversityEvelin Tiralongo - Griffith UniversityAmie Steel - University of Technology Sydney
- Publication Details
- Journal of pediatric psychology, Vol.46(1), pp.100-111
- Publisher
- Oxford Univ Press
- Number of pages
- 12
- Identifiers
- 991013035764202368
- Copyright
- (C) The Author(s) 2020. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com
- Academic Unit
- National Centre for Naturopathic Medicine
- Language
- English
- Resource Type
- Journal article