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The Experience of Facilitating Inclusive Research Advisory Groups With Parents and People With Intellectual Disability and/or Autism Spectrum Disorder
Journal article   Peer reviewed

The Experience of Facilitating Inclusive Research Advisory Groups With Parents and People With Intellectual Disability and/or Autism Spectrum Disorder

Andrew Cashin, Michelle Kersten, Virginia Howie, Amy Pracilio, Julia Morphet, Ken Griffin, Julian Trollor and Nathan Wilson
Advances in Nursing Science
20/04/2023
DOI: https://doi.org/10.1097/ANS.0000000000000497
PMID: 37185206

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Abstract

autism spectrum disorder consumer participation health care advisory groups inclusive research intellectual disability nursing
There is little nursing research about process issues in conducting inclusive project advisory groups of people with autism and/or intellectual disability or those who are parents/carers of this cohort. Through a descriptive qualitative design, this article aims to analyze the processes, challenges, and solutions when facilitating these groups for a nursing project in Australia. Reflexive thematic analysis was utilized to analyze field notes and meeting minutes. Results highlight the need for a defined, robust communication process between researchers and advisory groups, skilled facilitators, and careful planning of when in the life of the project the groups can contribute meaningfully. This project offers a proposed framework for the valuable contribution of lived experiences from research advisory groups.

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