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Published (Version of record)CC BY-NC V4.0, Open Access
Published (Version of record)CC BY-NC V4.0, Open
Journal article
Scales to measure core outcomes for the quality of dementia care in home or residential aged care facilities: a rapid review
BMJ open, Vol.15(12), pp.1-12
02/12/2025
PMID: 41338649
Appears in Recent Faculty of Health Publications
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Abstract
Background: The Core Outcome Measures for Improving Dementia Care (COM-IC) project aims to develop a core outcome set for measuring the quality of care provided to people living with dementia in routine care settings. In a previous stage of the project, 17 core outcomes were identified. This study is the next step, aiming to review the literature to identify existing or recommended, validated scales for measuring the identified core outcomes.
Design: A rapid review
Data sources: Six electronic databases (PubMed, Embase (Elsevier), CINAHL Complete (EBSCOhost), APA PsycINFO (EBSCOhost), Web of Science (Clarivate) and Scopus (Elsevier) were searched. Searches were completed on 12 July 2024.
Eligibility criteria: Peer-reviewed systematic reviews or original validation studies of scales measuring dignity; engagement in advance care planning; pain; quality of life; feeling safe and secure; emotional well-being; diagnosis of dementia; behavioural and psychological symptoms of dementia; the importance of relationships; meaningful activities; hygiene and comfort; resource utilisation and safety incidents for people living with dementia were included. Peer-reviewed systematic reviews or original validation studies of the scales to measure informal carers' quality of life, their educational opportunities, formal carers' morale and dementia-specific qualifications were also included. All studies were required to have been conducted among people living with dementia or carers, as appropriate, and to have full texts available in English.
Data extraction and synthesis: Data on the scale's name, the number of subscales, subscales' names, the number of items, response options, scoring, estimated time to complete the scale, recommended frequency of data collection and the setting where the scale was first validated were extracted. Findings are presented in figures, tables and narrative texts.
Results: A total of 88 validated scales were identified. No scales measuring dignity, engagement in advance care planning, feeling safe and secure, hygiene or safety incidents were validated for people living with dementia. No scale was identified to measure the importance of relationships for people living with dementia, the formal carers' dementia-specific qualifications or the educational opportunities for informal carers. The review also describes the 50 recommended or validated scales.
Conclusions: Several validated or recommended scales exist to measure core outcomes identified as important for assessing the quality of care provided to people living with dementia in routine care settings. This review offers COM-IC stakeholders and other potential users with information on the validated/recommended scales to measure these core outcomes.
Details
- Title
- Scales to measure core outcomes for the quality of dementia care in home or residential aged care facilities: a rapid review
- Creators
- Tiet-Hanh Dao-Tran - The University of QueenslandDanelle Kenny - The University of QueenslandAlyssa Welch - The University of QueenslandDebbie Brittain - The University of QueenslandKaryn Lendich - The University of QueenslandJane Thompson - The University of QueenslandBronte Parkin - The University of QueenslandJack S. Nunn - Science for All (Australia, Melbourne)Greta Vos - The University of QueenslandTracy Comans - The University of Queensland
- Publication Details
- BMJ open, Vol.15(12), pp.1-12
- Publisher
- BMJ Publishing Group; LONDON
- Grant note
- This work was supported by a Medical Research Future Fund (Dementia, Ageing and Aged Care Mission) targeted grant awarded in 2021 (grant number 2007650).
- Identifiers
- 991013339790802368
- Copyright
- © Author(s) (or their employer(s)) 2025.
- Academic Unit
- Faculty of Health
- Language
- English
- Resource Type
- Journal article