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Quality of life in people with ongoing symptoms of coeliac disease despite adherence to a strict gluten-free diet
Journal article   Open access   Peer reviewed

Quality of life in people with ongoing symptoms of coeliac disease despite adherence to a strict gluten-free diet

Joanna E Harnett and Stephen P Myers
Scientific Reports, Vol.10, 1144
24/01/2020
DOI: https://doi.org/10.1038/s41598-020-58236-8
PMCID: PMC6981136
PMID: 31980719
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Published (Version of record)CC BY V4.0,  Open Access
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Abstract

Health care Quality of life
People with Coeliac disease who suffer persistent symptoms despite adherence to a gluten-free diet are at a greater risk of a reduced health related quality of life. The purpose of this paper is to report the quality of life experienced by this specific group of patients in Australia. A Coeliac Disease Specific Questionnaire (CDQ) was administered to 45 people who were enrolled in a clinical trial and reported persistent symptoms of Coeliac disease despite adherence to a strict gluten free diet. The clinical trial was based in New South Wales, Australia. The instrument used was a subscale and total scores of a CDQ measuring health related quality of life. At baseline the overall mean CDQ score was 147 ± 3.31 (optimum 196) consisting of 4 subscales; gastrointestinal 33 ± 0.88, emotional 32.9 ± 0.99, worries 39.8 ± 0.79 and social 41 ± 6.12 each with a potential score of 49. The health related quality of life of people reporting persistent symptoms of Coeliac disease despite adherence to a gluten free diet is sub-optimal with concerningly low scores for emotional quality.

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