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Perceived barriers and enablers to utilising the Australian National Disability Insurance Scheme for adults with an intellectual disability and their families: A scoping review
Journal article   Open access   Peer reviewed

Perceived barriers and enablers to utilising the Australian National Disability Insurance Scheme for adults with an intellectual disability and their families: A scoping review

Alice Zubrinich, Gideon de Jong, Nasim Salehi and Richard Lakeman
Journal of applied research in intellectual disabilities, Vol.37(4), e13240
07/2024
DOI: https://doi.org/10.1111/jar.13240
PMID: 38654612
Appears in  Recent Faculty of Health Publications
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Perceived barriers and enablers to utilising the AustralianNational Disability Insurance Scheme for adults with anintellectual disability and their families: A scoping review1.42 MBDownloadView
Published (Version of record)CC BY-NC-ND V4.0,  Open Access
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Perceived barriers and enablers to utilising the AustralianNational Disability Insurance Scheme for adults with anintellectual disability and their families: A scoping reviewView
Published (Version of record)CC BY-NC-ND V4.0,  Open

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Abstract

adult with an intellectual disability carers collaborative practice decision-making National Disability Insurance Scheme NDIS
Background The introduction of the National Disability Insurance Scheme (NDIS) in Australia in 2013 promised significant improvements in the lives of adults with intellectual disabilities. Although the scheme enables support, there are challenges associated with establishing eligibility and administering funds. This scoping review explored perceived barriers and enablers to effectively utilising the NDIS for adults with intellectual disabilities and their families. Method A scoping review of the empirical literature on the NDIS and intellectual disabilities included nine studies in this review. These papers were subjected to thematic analysis and the findings were presented as a narrative synthesis. Results The key themes identified were: (1) Limited understanding of the NDIS process; (2) Language use and capacity assumptions; (3) Unrealistic goals and progress, and difficulty utilising plans; (4) Expectations of families and associated workloads; (5) Opening up opportunities not previously available; (6) Knowledgeable planners who actively seek to involve adults and their families. Conclusion Although qualitative studies demonstrate that adults with an intellectual disability and their families are largely satisfied with the increased opportunities the NDIS has afforded them, there are various areas in which accessibility to services can be improved. In order for the NDIS to continue to improve, the results from this scoping review underline the need for adults with an intellectual disability and their support systems to have their voices heard and be utilised.

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