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Patients Describe their Lived Experiences of Battling to Live with Complex Regional Pain Syndrome1.21 MB
Published (Version of record)CC BY-NC-ND V4.0, Open Access
Published (Version of record)CC BY-NC-ND V4.0, Open
Journal article
Patients Describe their Lived Experiences of Battling to Live with Complex Regional Pain Syndrome
The Journal of Pain, Vol.22(9), pp.1111-1128
09/2021
PMID: 33892156
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Source: InCites
Abstract
Complex regional pain syndrome (CRPS) has never comprehensively been examined from a lived experience perspective. Patients generally have a poorer quality of life than people with other chronic pain conditions. This study aimed to understand the essence of living with CRPS. Data were collected from 17 patients via in-depth interviews. Hermeneutic discussions with four health professionals generated deeper insights. Internet blogs and a book containing patient stories were included for theme verification and triangulation. CRPS is seen as a war-like experience and five themes were identified within the battle: "dealing with the unknown enemy", "building an armoury against a moving target", "battles within the war", "developing battle plans with allies" and "warrior or prisoner of war". Patients live with a chronic pain condition and experience problems unique to CRPS such as fear of pain extending to other parts of their body. Use of the model generated by this research may assist patient/clinician interactions and guide therapeutic discussions. Support for people living with CRPS does not always exist, and some healthcare professionals require additional education about the condition. Better health outcomes are experienced by patients when their personal situation and experiences are heard and understood by health care professionals. PERSPECTIVE: This article presents the lived experience of CRPS. This information and the model generated can help clinicians to better understand their patients and deliver appropriate patient-centered care.
Details
- Title
- Patients Describe their Lived Experiences of Battling to Live with Complex Regional Pain Syndrome
- Creators
- Colleen Johnston-Devin (Author) - University of the Sunshine CoastFlorin Oprescu (Author) - University of the Sunshine CoastMarion Gray (Author) - University of the Sunshine CoastMarianne Wallis (Author) - University of the Sunshine Coast
- Publication Details
- The Journal of Pain, Vol.22(9), pp.1111-1128
- Publisher
- Churchill Livingstone
- Identifiers
- 991012948493902368
- Copyright
- © 2021 The Author(s). Published by Elsevier Inc. on behalf of United States Association for the Study of Pain, Inc. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/)
- Academic Unit
- Faculty of Health
- Language
- English
- Resource Type
- Journal article