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Parents perception and experience of transitioning to adulthood for their child diagnosed with an intellectual disability
Journal article   Peer reviewed

Parents perception and experience of transitioning to adulthood for their child diagnosed with an intellectual disability

Alice Nucifora, Sue Walker and Areana Eivers
International journal of developmental disabilities, Vol.70(4), pp.719-729
2024
DOI: https://doi.org/10.1080/20473869.2022.2141877
Appears in  Recent Faculty of Education Publications

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Abstract

Intellectual disability Adulthood transition to adulthood Parenting NDIS Developmental Psychology Special education and disability Child and adolescent development Workforce transition and employment
Definitions of adulthood for people with intellectual disability are often complicated, with milestones being markedly different for this population. This is then associated with difficulties for both the people with intellectual disability and their parents, who are closely involved in this transitional period. This paper aims to report on parents’ perception and experience of adulthood for their son or daughter with an Intellectual Disability(ID). Qualitative data were collected through 3060-minute phone interviews with eight parents of a person with an intellectual disability aged 15 or older (mean parent age¼60; mean child age¼23). Thematic analysis found that Perception of Adulthood encompassed themes of Independence and Normality. Experiences of Adulthood were categorised under Government Services, Responsibility and Social Supports. Findings of this research provide information for the growing literature around adulthood for people with intellectual dis-ability, as well as how to amend policies and procedures for services that cater to people with intellectual dis-ability and their parents during this transition.

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