More Than Talking: A Scoping Review of Innovative Approaches to Qualitative Research Involving People With Dementia

Lyn Phillipson; Athena Hammond

doi:10.1177/1609406918782784

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More Than Talking: A Scoping Review of Innovative Approaches to Qualitative Research Involving People With Dementia

Journal article

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More Than Talking: A Scoping Review of Innovative Approaches to Qualitative Research Involving People With Dementia

Lyn Phillipson and Athena Hammond

International journal of qualitative methods, Vol.17(1)

12/2018

DOI: https://doi.org/10.1177/1609406918782784

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Abstract

Methods in qualitative inquiry

qualitative meta-analysis/synthesis

photo elicitation

participatory action research

narrative research

Participation in qualitative research frequently relies upon recall and verbal expression, which may be difficult for some people with dementia. While the use of arts-based and visual methods are transforming dementia care, exploratory research and evaluation methods have lagged behind with regard to the use of innovative qualitative approaches. This scoping review identified innovative qualitative methods that have been used to effectively engage and involve people with dementia in social and health research. Systematic searches of academic databases, Google Scholar, and hand searches identified 24 peer-reviewed articles published since 2010 for inclusion. Analysis focused on a description of both the motivation and methods ascribed by the researchers and how the capacities of people with dementia were engaged as part of the research process. The most frequently used innovative method was Photovoice. Action research, case study, narrative production, ethnography, participatory filmmaking and theater, co-research, and mixed methods were also used. Regardless of methodology, most studies used a participatory approach that incorporated visual methods alongside adapted semistructured or unstructured interviews. Researchers were focused on inclusion, empowerment, self-expression, flexibility, and communication when selecting methods. Providing an appropriate research environment and committing time for repeat contact, observation, and engagement were important considerations.

Details

Title: More Than Talking: A Scoping Review of Innovative Approaches to Qualitative Research Involving People With Dementia
Creators: Lyn Phillipson - University of Wollongong
Athena Hammond - University of Wollongong
Publication Details: International journal of qualitative methods, Vol.17(1)
Publisher: Sage
Number of pages: 13
Grant note: APP1107401 / National Health and Medical Research Council (NHMRC-ARC Dementia Research Development Grant)
Identifiers: 991013154235302368
Copyright: © The Author(s) 2018. Creative Commons License (CC BY-NC 4.0) This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/).
Academic Unit: Faculty of Health
Language: English
Resource Type: Journal article

More Than Talking: A Scoping Review of Innovative Approaches to Qualitative Research Involving People With Dementia

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UN Sustainable Development Goals (SDGs)

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