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Involving Experts by Experience in Craniofacial Research
Journal article   Open access   Peer reviewed

Involving Experts by Experience in Craniofacial Research

Amanda Bates, Kenny Ardouin and Danielle McWilliams
The Cleft palate-craniofacial journal, Vol.62(11), pp.1975-1980
11/2025
PMID: 39267370
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Abstract

cleft lip and palate psychosocial adjustment quality of life
Many areas of health research increasingly involve end users of research (typically patients and their families/caregivers) in study design, management, and dissemination. Beyond recruiting patients as research participants, the shift is towards engaging patients, parents and caregivers as active partners on the research team, who are recognised and valued as 'experts-by-experience' (EbyE). Currently, involving EbyE is not routine in global craniofacial research. This paper highlights the value of EbyE involvement, addresses how to incorporate EbyE at all stages of research and discusses key considerations in facilitating positive experiences for EbyE.

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