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Journal article
Inclusion of people with intellectual disability in the decision-making and governance of disability and community organisations
Journal of intellectual & developmental disability, Vol.First online, p.1
14/03/2025
PMID: 40083254
Appears in Recent Faculty of Health Publications
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Abstract
Background: The value of people with disability being involved in the decision-making and governance of community organisations is increasingly being recognised. This paper reports on research that aims to understand governance models that promote the recruitment, decision-making, and leadership of people with intellectual disability.
Method: A descriptive phenomenological analysis of 27 semi-structured interviews was conducted. The participants were board members with intellectual disability (n = 5), board members with a disability other than intellectual (n = 6), board members without disability (n = 4), senior management staff (n = 8), and board support people (n = 4).
Results: Five themes emerged from the data. These themes reflect the impact of inclusion, pathways of skill development, accessibility requirements, the provision of skilled support, and the concerns that create a barrier to inclusion.
Conclusion: Inclusive governance appears to work best when organisations value and commit to inclusion, setting up skill development pathways to governance roles, with accessible practices and individualised support.
Details
- Title
- Inclusion of people with intellectual disability in the decision-making and governance of disability and community organisations
- Creators
- Bernadette Curryer - Side By Side Advocacy (Australia, Parramatta)Michelle Donelly - Side By Side Advocacy (Australia, Parramatta)Kim Roots - SBSAPMargaret Spencer - University of SydneyWill Harding - SBSAPKatrina Sneath - SBSAP
- Publication Details
- Journal of intellectual & developmental disability, Vol.First online, p.1
- Publisher
- ROUTLEDGE JOURNALS, TAYLOR & FRANCIS LTD; ABINGDON
- Grant note
- This work was supported by the National Disability Insurance Agency and the Australian Government Department of Social Services.
- Identifiers
- 991013266688402368
- Copyright
- © 2025 The Author(s).
- Academic Unit
- Faculty of Health
- Language
- English
- Resource Type
- Journal article