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Published (Version of record)CC BY-NC V4.0, Open Access
Published (Version of record)CC BY-NC V4.0, Open
Journal article
Identification of core outcomes for quality in routine care provided to people living with dementia in Australia: a multilevel modified Delphi consensus study
BMJ open, Vol.15(6), pp.1-13
17/06/2025
PMID: 40533217
Appears in Recent Faculty of Health Publications
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Abstract
Objective: To co-design a core outcome set with people living with dementia and other stakeholders that can be used to measure the quality of dementia care in home care and residential settings.
Design: Multilevel modified Delphi consensus study. A priori consensus threshold of 70% was used to include or exclude outcomes.
Setting: Routine dementia care provided through home care and residential aged care facilities in Australia.
Participants: A stakeholder panel comprising people living with dementia, formal and family/informal carers of people living with dementia, advocates, policy experts, alliedhealth professionals, nurses and professionals working in the aged care industry. Round 1 included 10 panellists; subsequent rounds extended the number of participants to 24.
Results: Seven outcome domains (Death, Physiological and clinical, Functional, Life impact, Resources, Adverse events and Education), encompassing 105 individual
outcomes were considered by the panel over four rounds. The 105 outcomes were distilled to 16 outcomes identified as important in home care and 15 in residential aged care. In both settings, nine outcomes (Dignity, Advanced care planning, Meaningful activities, Feeling safe and secure, Emotional wellbeing, Quality of Life, Resource utilisation, Safety incidents and Dementia-specific qualifications for care staff) were considered important. Additionally, seven outcomes in the home care setting
(Behavioural symptoms of dementia, Diagnosis of
dementia, Hygiene, Importance of Relationships, Quality
of carer and family lives, Dementia care navigation and
Opportunities for unpaid carers) and six outcomes in the
residential aged care setting (Neuropsychiatric symptoms
of dementia, Pain, Hygiene and comfort, Medication safety,
Staff carer morale and Adverse effects) were classified as
important.
Conclusions The outcomes identified during this modified
Delphi consensus study provide a promising basis for the
development of a meaningful, practical and measurable
core outcome set that could be used in dementia care settings to improve the quality of routine care provided to
people living with dementia.
Details
- Title
- Identification of core outcomes for quality in routine care provided to people living with dementia in Australia: a multilevel modified Delphi consensus study
- Creators
- Danelle Kenny (Corresponding Author) - The University of QueenslandAlyssa Welch (Author) - The University of QueenslandTiet-Hanh Dao-Tran (Author) - The University of QueenslandKaryn Lendich (Author) - The University of QueenslandDebbie Brittain (Author) - The University of QueenslandJane Thompson (Author) - The University of QueenslandBronte Parkin (Author) - The University of QueenslandJack S. Nunn (Author) - La Trobe UniversityFleur O'Keefe (Author) - The University of QueenslandRuth Semler (Author) - The University of QueenslandBenedict Davies (Author) - The University of QueenslandTracy Comans (Author) - The University of Queensland
- Publication Details
- BMJ open, Vol.15(6), pp.1-13
- Publisher
- BMJ Group; LONDON
- Grant note
- This research is funded by a Medical Research Future Fund (Dementia Ageing and Aged Care Mission) targeted grant, awarded in 2021 (2007650).
- Identifiers
- 991013339790502368
- Copyright
- © Author(s) (or their employer(s)) 2025.
- Academic Unit
- Faculty of Health
- Language
- English
- Resource Type
- Journal article