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‘How Your Spirit Is Travelling’—Understanding First Nations Peoples’ Experiences of Living Well with and after Cancer
Journal article   Open access   Peer reviewed

‘How Your Spirit Is Travelling’—Understanding First Nations Peoples’ Experiences of Living Well with and after Cancer

Anneliese de Groot, Bena Brown, Daniel Lindsay, Alana Gall, Nicole Hewlett, Amy Hickman and Gail Garvey
International journal of environmental research and public health, Vol.21(6), 798
19/06/2024
DOI: https://doi.org/10.3390/ijerph21060798
PMID: 38929044
Appears in  Recent National Centre for Naturopathic Medicine Publications
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Published (Version of record)CC BY V4.0,  Open Access
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Abstract

Indigenous health health disparities health equity cancer cancer treatment living well with and after cancer Aboriginal and Torres Strait Islander First Nations Peoples
As the number of people living with cancer increases, it is important to understand how people can live well with and after cancer. First Nations people diagnosed with cancer in Australia experience survival disparities relating to health service accessibility and a lack of understanding of cultural needs and lived experiences. This study aimed to amplify the voices of First Nations individuals impacted by cancer and advance the development of a culturally informed care pathway. Indigenist research methodology guided the relational and transformative approach of this study. Participants included varied cancer experts, including First Nations people living well with and after cancer, health professionals, researchers, and policy makers. Data were collected through online Yarning circles and analysed according to an inductive thematic approach. The experience of First Nations people living well with and after cancer is inextricably connected with family. The overall themes encompass hope, family, and culture and the four priority areas included the following: strength-based understanding of cancer, cancer information, access to healthcare and support, and holistic cancer services. Respect for culture is interwoven throughout. Models of survivorship care need to integrate family-centred cancer care to holistically support First Nations people throughout and beyond their cancer journey.

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