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Experiences of Support Following Autism Diagnosis in Adulthood
Journal article   Peer reviewed

Experiences of Support Following Autism Diagnosis in Adulthood

Yunhe Huang, Samuel RC Arnold, Kitty-Rose Foley and Julian Trollor
Journal of Autism and Developmental Disorders, pp.1-12
21/11/2022
PMID: 36409392

Metrics

UN Sustainable Development Goals (SDGs)

This output has contributed to the advancement of the following goals:

#3 Good Health and Well-Being

Source: InCites

Abstract

Autism Adults Health services Support Interventions Diagnosis
This study aimed to explore experiences of support after adulthood autism diagnosis. In this mixed-methods survey study of 137 adults, we found that most common formal supports received were counselling and mental health. Common unmet support needs were sensory sensitivities and accessing other services. Cost, lack of information, and fear of not being taken seriously were common barriers. Informal support was mainly helpful for self-understanding and emotions toward diagnosis. Qualitative fndings included difculties accessing formal support, need for practical quality-of-life supports and support from autistic peers and online communities. Based on these fndings, future development of supportive interventions should address unmet needs, improve access, and explore the integration of autistic peer support and online support into formal services.

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