Files and links (2)
Published (Version of record)CC BY-NC-ND V4.0, Open Access
Published (Version of record)CC BY-NC-ND V4.0, Open
Journal article
Establishing patient partners’ roles on research teams: a scoping review
Research involvement and engagement, Vol.10(1), pp.1-14
18/12/2024
PMID: 39696699
Appears in Recent Faculty of Health Publications
Metrics
1 Record Views
Abstract
Background: There are a myriad of ways patient partners can enact their roles on research teams. International guidelines emphasize the need for a collaborative approach to determining these roles to try to improve research impact and positive patient partner experience. The aims of this review were to: (1) describe how patient partners’ roles as co-researchers in health research are determined; and (2) identify factors that influence how these decisions are made.
Methods: A scoping review was conducted. Four databases were searched plus citation searching occurred. Descriptions of English language studies of any design and commentaries of studies that report on patient partners’ or researchers’ reflections on their decision-making processes for engagement were included. Two reviewers
completed screening and data extraction, with a third to resolve disagreements. Results were summarized and then
content analysis was undertaken to synthesize the findings. Two patient partners contributed to the protocol development, screening, data interpretation, and manuscript writing at varying times during the process.
Results: A total of 45 papers (25 commentaries, 19 studies and 1 both a study and commentary) were included in this
review. Most papers were from the United Kingdom (n=15) and Canada (n=12). Most patient partners had experiences related to chronic conditions rather than acute or time-limited illnesses. The synthesis yielded two categories. The first category, the research and research team attributes shape patient partner roles, encompassed patient partner, researcher and activity related factors that influenced patient partner engagement in activities. The second category, shared and ongoing decision-making, described the decision-making process to determine patient partner engagement, timing of these decisions, and tools to support these decisions.
Conclusion: A dynamic, systematic and shared decision-making approach to determining patient partners’ roles in the research process has the potential to support meaningful engagement and maximize benefits. Because the research process may evolve over time and patient partners situations can change, there may be a need to renegotiate the patient partner’s role.
Details
- Title
- Establishing patient partners’ roles on research teams: a scoping review
- Creators
- Georgia Tobiano - Griffith University (Australia, Gold Coast)Brigid M. Gillespie - Griffith University (Australia, Gold Coast)Joan Carlini - Griffith University (Australia, Gold Coast)Rachel Muir - Griffith University (Australia, Gold Coast)Jananee Rasiah - Robbins Health Learning Centre (Canada, Edmonton)Ching Shan Wan - Griffith University (Australia, Gold Coast)Tamara L. McCarron - University of CalgaryKaren Moffat - Alberta Health ServicesSepideh Jahandideh - Griffith University (Australia, Gold Coast)Wendy Chaboyer - Griffith University (Australia, Gold Coast)
- Publication Details
- Research involvement and engagement, Vol.10(1), pp.1-14
- Publisher
- BioMed Central
- Identifiers
- 991013317613602368
- Copyright
- © The Author(s) 2024.
- Academic Unit
- Faculty of Health
- Language
- English
- Resource Type
- Journal article