Comprehensive quality assessment for aphasia rehabilitation after stroke: protocol for a multicentre, mixed-methods study

Sam Harvey; Marissa Stone; Sally Zingelman; David A Copland; Monique F Kilkenny; Erin Godecke; Dominique A Cadilhac; Joosup Kim; Muideen T Olaiya; Miranda L Rose; Caterina Breitenstein; Kirstine Shrubsole; Robyn O'Halloran; Annie J Hill; Deborah Hersh; Kathryn Mainstone; Penelope Mainstone; Carolyn A Unsworth; Emily Brogan; Kylie J Short; Clare L Burns; Caroline Baker; Sarah J Wallace

doi:10.1136/bmjopen-2023-080532

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Comprehensive quality assessment for aphasia rehabilitation after stroke: protocol for a multicentre, mixed-methods study

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Comprehensive quality assessment for aphasia rehabilitation after stroke: protocol for a multicentre, mixed-methods study

Sam Harvey, Marissa Stone, Sally Zingelman, David A Copland, Monique F Kilkenny, Erin Godecke, Dominique A Cadilhac, Joosup Kim, Muideen T Olaiya, Miranda L Rose, …

BMJ open, Vol.14(3), e080532

21/03/2024

DOI: https://doi.org/10.1136/bmjopen-2023-080532

PMID: 38514146

Appears in Recent Faculty of Health Publications

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Abstract

Introduction: People with aphasia following stroke experience disproportionally poor outcomes, yet there is no comprehensive approach to measuring the quality of aphasia services. The Meaningful Evaluation of Aphasia SeRvicES (MEASuRES) minimum dataset was developed in partnership with people with lived experience of aphasia, clinicians and researchers to address this gap. It comprises sociodemographic characteristics, quality indicators, treatment descriptors and outcome measurement instruments. We present a protocol to pilot the MEASuRES minimum dataset in clinical practice, describe the factors that hinder or support implementation and determine meaningful thresholds of clinical change for core outcome measurement instruments. Methods and analysis: This research aims to deliver a comprehensive quality assessment toolkit for poststroke aphasia services in four studies. A multicentre pilot study (study 1) will test the administration of the MEASuRES minimum dataset within five Australian health services. An embedded mixed-methods process evaluation (study 2) will evaluate the performance of the minimum dataset and explore its clinical applicability. A consensus study (study 3) will establish consumer-informed thresholds of meaningful change on core aphasia outcome constructs, which will then be used to establish minimal important change values for corresponding core outcome measurement instruments (study 4). Ethics and dissemination: Studies 1 and 2 have been registered with the Australian and New Zealand Clinical Trial Registry (ACTRN12623001313628). Ethics approval has been obtained from the Royal Brisbane and Women’s Hospital (HREC/2023/MNHB/95293) and The University of Queensland (2022/HE001946 and 2023/HE001175). Study findings will be disseminated through peer-reviewed publications, conference presentations and engagement with relevant stakeholders including healthcare providers, policy-makers, stroke and rehabilitation audit and clinical quality registry custodians, consumer support organisations, and individuals with aphasia and their families.

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Title: Comprehensive quality assessment for aphasia rehabilitation after stroke: protocol for a multicentre, mixed-methods study
Creators: Sam Harvey - University of Queensland
Marissa Stone - St Vincent’s Hospital Melbourne
Sally Zingelman - University of Queensland
David A Copland - University of Queensland
Monique F Kilkenny - Monash University
Erin Godecke - Edith Cowan University
Dominique A Cadilhac - Monash University
Joosup Kim - Monash University
Muideen T Olaiya - Monash University
Miranda L Rose - La Trobe University
Caterina Breitenstein - University of Muenster (Muenster, Germany)
Kirstine Shrubsole - University of Queensland
Robyn O'Halloran - La Trobe University
Annie J Hill - La Trobe University
Deborah Hersh - Curtin University
Kathryn Mainstone - University of Queensland
Penelope Mainstone - University of Queensland
Carolyn A Unsworth - Monash University
Emily Brogan - Edith Cowan University
Kylie J Short - University of Queensland
Clare L Burns - Royal Brisbane and Women's Hospital
Caroline Baker - Monash Health
Sarah J Wallace - University of Queensland
Publication Details: BMJ open, Vol.14(3), e080532
Publisher: BMJ Group
Identifiers: 991013176512002368
Academic Unit: Allied Health and Midwifery; Faculty of Health
Language: English
Resource Type: Journal article

Comprehensive quality assessment for aphasia rehabilitation after stroke: protocol for a multicentre, mixed-methods study

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