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Co-design to improve palliative care for LGBTIQ+ people: evaluating development of eLearning
Journal article   Open access   Peer reviewed

Co-design to improve palliative care for LGBTIQ+ people: evaluating development of eLearning

Meaghan Vosz, Mark Hughes and Colleen Cartwright
Health & Social Care in the Community, Vol.First online(1), pp.1-10
28/05/2026
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Co-Design to Improve Palliative Care for LGBTIQ+ PeopleView
Published (Version of record) Open CC BY V4.0

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Abstract

Co-design evaluation LGBTQI+ palliative care process evaluation
LGBTIQ+ people continue to experience barriers to accessing palliative care and poor palliative care outcomes, including fear ofdiscrimination, risk of abuse and neglect, and having their end-of-life wishes unmet. While co-design is increasingly being used toaddress the needs of minoritized communities, little is known about the processes of co-designing programs to improve palliativecare with LGBTIQ+ communities. This research evaluated a co-design process used to develop an eLearning intervention toimprove Australian palliative care providers’ awareness of the issues and needs of LGBTIQ+ people. Semistructured qualitativeinterviews (n = 11) were conducted with co-design team members (n = 8), which explored their expectations and experiences of theprocess over 10 months from 2022 to 2023. Co-designers were diverse people with a range of lived and professional experiences inpalliative care–related roles. Thematic analysis identifed three themes: co-designers shared common goals, the facilitation processenabled the participation of LGBTIQþ participants, and the substantial work required outside of co-design meetings to completethe intervention design. The study highlighted conditions that constrain co-design processes and the importance of specialistfacilitation and organizational support to manage these conditions within tight time and funding limitations. Limitations to co-design best practice can be mitigated by transparent and accountable communication with efective and supportive facilitation.

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