Journal article
Choose your own adventure: pathways to adulthood autism diagnosis in Australia
Journal of Autism and Developmental Disorders, Vol.52, pp.2984-2996
09/07/2021
PMID: 34241747
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Source: InCites
Abstract
Pathways to diagnosis in adulthood are poorly understood. Even less is known about undiagnosed adults who believe they may be autistic. This mixed-methods online survey examined adults’ journeys from initial concern to receiving the diagnosis. Quantitative findings showed the diagnostic process to be highly heterogeneous. Qualitative analysis identified desires for explanation and support as motives for seeking diagnosis. Cost and fear of not being taken seriously were major barriers, echoed by qualitative responses that described the process as confusing, expensive and time-consuming. While most participants were satisfied with the diagnosis, their emotional reactions were complex. Findings support the need for thoroughly implementing national guidelines, and for improved knowledge and communication in mainstream clinicians encountering clients with possible autism characteristics.
Details
- Title
- Choose your own adventure: pathways to adulthood autism diagnosis in Australia
- Creators
- Yunhe Huang (Author) - University of New South WalesSamuel RC Arnold (Author) - University of New South WalesKitty-Rose Foley (Author) - Southern Cross UniversityJulian Trollor (Author) - University of New South Wales
- Publication Details
- Journal of Autism and Developmental Disorders, Vol.52, pp.2984-2996
- Publisher
- Springer New York LLC
- Identifiers
- 991012948599702368
- Academic Unit
- Allied Health and Midwifery; Faculty of Health
- Language
- English
- Resource Type
- Journal article