Best Practice in Post-Stroke Aphasia Services According to People with Lived Experience. A Modified Nominal Group Technique Study

Sarah J. Wallace; Lisa Anemaat; Michelle Attard; Caroline Baker; Karianne Berg; Marcella Carragher; Jytte Isaksen; Brooke Ryan; Nina Simmons-Mackie; Edwina Wang; Linda Worrall; Kirstine Shrubsole

doi:10.1080/02687038.2023.2262693

Back

Best Practice in Post-Stroke Aphasia Services According to People with Lived Experience. A Modified Nominal Group Technique Study

Journal article

Open access

Peer reviewed

Best Practice in Post-Stroke Aphasia Services According to People with Lived Experience. A Modified Nominal Group Technique Study

Sarah J. Wallace, Lisa Anemaat, Michelle Attard, Caroline Baker, Karianne Berg, Marcella Carragher, Jytte Isaksen, Brooke Ryan, Nina Simmons-Mackie, Edwina Wang, …

Aphasiology, Vol.38(7), pp.1157-1179

2024

DOI: https://doi.org/10.1080/02687038.2023.2262693

Appears in Recent Faculty of Health Publications

Files and links (2)

pdf

Best Practice in Post-Stroke Aphasia Services According to People with Lived Experience. A Modified Nominal Group Technique Study1.68 MBDownload View

Published (Version of record)CC BY V4.0, Open Access

url

Best Practice in Post-Stroke Aphasia Services According to People with Lived Experience. A Modified Nominal Group Technique StudyView

Published (Version of record)CC BY V4.0, Open

Metrics

Abstract

best practice recommendations

stroke

aphasia

nominal group technique

consumers

Background Clinical practice guidelines and best practice statements aim to optimise patient outcomes through recommended processes of care. The Aphasia United Best Practice Recommendations were developed to provide multi-national best-practice guidance for post-stroke aphasia services. The recommendations were developed through a multi-stage process which synthesised research evidence and the expert opinions of clinicians and researchers. To date, however, people with lived experience of aphasia have not contributed their expertise to these recommendations. Aims To explore the relevance, comprehensibility, and comprehensiveness of the Aphasia United Best Practice Recommendations, from the perspective of people with aphasia and their significant others. Conducted during the COVID-19 pandemic, a secondary aim was to evaluate participants’ satisfaction with videoconferencing for research. Methods & Procedures People with aphasia and their significant others participated in separate focus groups via videoconferencing. Participants were recruited at five Australian sites (representing major cities and regional locations). Participants rated the relevance and comprehensibility (clarity) of the recommendations and suggested improvements. Using the nominal group technique, participants assessed the comprehensiveness of the existing recommendations, and generated and prioritised new items for inclusion. These recommendations were synthesised across groups using qualitative content analysis. Participants rated their satisfaction with videoconferencing for research through a bespoke questionnaire. Outcomes & Results People with aphasia (n=13) and their significant others (n=10) participated in one of eight focus groups in Australia. Most participants rated the existing recommendations as highly relevant, however improvements to comprehensibility and comprehensiveness were suggested. Fifty-one new recommendations were prioritised and synthesised into seven themes for people with aphasia and six themes for significant others. The most highly ranked theme for people with aphasia was, Increased awareness about: what aphasia is, the impacts of aphasia, and how to communicate with a person with aphasia. The theme ranked most highly by significant others was, Aphasia services should be person and family centred. All participants reported being satisfied or highly satisfied with the use of Zoom videoconferencing for research. Conclusions People with aphasia and their significant others in Australia identified new important best practice recommendations for aphasia services. The results of this study suggest that revisions to existing recommendations may improve their relevance, comprehensibility, and comprehensiveness. Participants were satisfied with the use of videoconferencing for research. The results of this research will inform a future consensus process to finalise the revised recommendations and to pair them with measurable quality indicators for post-stroke aphasia services.

Details

Title: Best Practice in Post-Stroke Aphasia Services According to People with Lived Experience. A Modified Nominal Group Technique Study
Creators: Sarah J. Wallace - University of Queensland
Lisa Anemaat - University of Queensland
Michelle Attard - Centre of Research Excellence in Aphasia Recovery and Rehabilitation, Australia
Caroline Baker - Monash Health
Karianne Berg - Nord University
Marcella Carragher - Centre of Research Excellence in Aphasia Recovery and Rehabilitation, Australia
Jytte Isaksen - University of Southern Denmark
Brooke Ryan - University of Queensland
Nina Simmons-Mackie - Southeastern Louisiana University
Edwina Wang - University of Queensland
Linda Worrall - University of Queensland
Kirstine Shrubsole - University of Queensland
Publication Details: Aphasiology, Vol.38(7), pp.1157-1179
Publisher: Routledge
Grant note: Sarah J. Wallace is supported by a National Health and Medical Research Council (NHMRC) Emerging Leadership Investigator Grant (1175821). This research was conducted with funding support from the Centre for Research Excellence in Aphasia Rehabilitation and Recovery (Aphasia CRE). Grant number: 1153236, La Trobe University (ABN: 64 804 735 113).
Identifiers: 991013141812902368
Copyright: © 2023 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/ licenses/by/4.0/).
Academic Unit: Allied Health and Midwifery; Faculty of Health
Language: English
Resource Type: Journal article

Best Practice in Post-Stroke Aphasia Services According to People with Lived Experience. A Modified Nominal Group Technique Study

Files and links (2)

Metrics

Abstract

Details

Southern Cross University Social media