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A scoping review to inform an auditing framework evaluating healthcare environments for inclusion of people with intellectual disability and/or autism
Journal article   Open access   Peer reviewed

A scoping review to inform an auditing framework evaluating healthcare environments for inclusion of people with intellectual disability and/or autism

Michelle Kersten, Nathan John Wilson, Amy Pracilio, Virginia Howie, Julian Trollor, Thomas Buckley, Julia Morphet, Julianne Bryce, Ken Griffin and Andrew Cashin
Journal of intellectual disabilities, Vol.ahead-of-print
22/05/2023
PMID: 37217215
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Published (Version of record)CC BY V4.0 Open Access
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Abstract

healthcare services evaluation intellectual disability autism equity reasonable adjustments
People with intellectual disability and/or autism are likely to be in hospital more often, for longer, and have poorer health outcomes. Few audit tools exist to identify their barriers in mainstream healthcare environments. This study aimed to identify evidence of audit characteristics of healthcare contexts specifically for people with intellectual disability and/or autism, for conceptual development of an auditing framework. A scoping review of evaluations of healthcare environments was completed in January 2023. Findings were presented using the PAGER framework. Of the sixteen studies identified, most originated in the UK, nine focused on intellectual disability, four on autism, and three were concerned with mixed diagnosis. Six domains for auditing healthcare environments were identified: care imperatives, communication to individuals, understanding communication from individuals, providing supportive environments of care, supporting positive behaviour, and actions to make things go well. Further research is recommended to refine an audit framework.

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