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A Keynote Address: A Guide to Supporting Conference Speakers with Lived Experience of Cleft Lip and/or Palate
Journal article   Open access   Peer reviewed

A Keynote Address: A Guide to Supporting Conference Speakers with Lived Experience of Cleft Lip and/or Palate

Kenny Ardouin, Danielle McWilliams and Amanda Bates
The Cleft palate-craniofacial journal, Vol.62(1), pp.140-143
01/2025
PMID: 37933127
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Published (Version of record) Open CC BY V4.0

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Abstract

cleft lip and palate psychosocial adjustment quality of life
Although the value of diversity within academia and society is increasingly recognised, the role of speakers with lived experience at cleft and craniofacial conferences remains inconsistent. This perspectives article shares reflection from three academics with lived experience of cleft discussing the value of including lived experience speakers routinely within conferences and outlining common challenges and barriers to the involvement of " experts-by-experience ". Key considerations and recommendations are offered to help conference organisers and delegates to make the most of the lived experience perspective, while ensuring the conference experience is positive for lived experience speakers.

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