Abstract
Development and Pilot Evaluation of 'Ready Steady School' a Personalised Website to Promote School Engagement Among Students With Cancer
Pediatric Blood & Cancer Volume 72: Abstracts from the 57th Congress of the International Society of Paediatric Oncology (SIOP) October 20–23, 2025, Vol.72(S6), p.S448
57th Congress of the International Society of Paediatric Oncology (SIOP), 57th (Amsterdam, The Netherlands, 20/10/2025–23/10/2025)
12/2025
Appears in Recent Faculty of Health Publications
Metrics
1 Record Views
Abstract
Background and Aims: Advancements in diagnosis and treatment have resulted in an increasing number of children surviving cancer. However lengthy treatments combined with the physical and cognitive impacts of cancer may significantly disrupt school attendance and participation, curtail learning prospects, and limit opportunities for young survivors to socialise with peers. The aims of this study were to: 1.) co-design Ready, Steady, School (RSS) an individually tailored website for students with cancer, their parents and teachers, to help facilitate a child’s education from diagnosis to survivorship; and 2.) pilot-test the RSS website.
Methods: The RSS website content and structure was codesigned with students, parents, teachers, and healthcare professionals (n = 14). Parents of survivors of childhood cancer were given access to RSS for 2-weeks and invited to complete pre-and post- questionnaires measuring feasibility, acceptability, and utility of RSS, student self-education advocacy/confidence, and level of unmet school-based information needs. Parents were also offered an optional semi-structured qualitative interview.
Results: Nineteen parents (100% mothers, mean age = 40.3 years) of children diagnosed with cancer (mean age at diagnosis = 3.5 years, mixed diagnoses), opted-in to the pilot study, with eight completing both pre- and post- questionnaires. On average parents spent 102 mins (range = 20mins–4 hrs) using the website. All parents (100%) reported that the content was ‘easy to understand’,‘useful’, and were ‘satisfied with the quality of information’. All parents (100%) agreed that RSS improved their knowledge about ‘their child’s education needs’, and ‘strategies to support their child’s education’, and were ‘satisfied with the website overall’. Most parents (87.5%) would use RSS again in future. The most frequently accessed website pages related to cancer’s impact on school and learning, social and emotional development, and accessing educational support.
Conclusions: Children with cancer face numerous challenges returning to school. Preliminary evaluation suggests RSS provides tailored, relevant and reliable information to support childhood cancer survivors’ ongoing education.
Details
- Title
- Development and Pilot Evaluation of 'Ready Steady School' a Personalised Website to Promote School Engagement Among Students With Cancer
- Creators
- Sarah Ellis - University of New South Wales (Australia, Sydney)Elin Irestorm - Lund UniversityClaire E Wakefield - University of New South Wales (Australia, Sydney)Mary Burns - University of New South Wales (Australia, Sydney)Richard Cohn - University of New South Wales (Australia, Sydney)Suncica Lah - The University of SydneyGlenn Marshall - Sydney Children’s Hospital (Sydney)Alistair Lum - University of New South Wales (Australia, Sydney)Thomas Walwyn - Royal Hobart HospitalBarbara Donnan - Sydney Children’s Hospital (Sydney)Amanda Carter - Children's Health Queensland Hospital and Health ServiceBelinda Barton - Children's Hospital at WestmeadEmma Prowse - John Hunter Children’s Hospital (Newcastle)Joanna Fardell - University of New South Wales (Australia, Sydney)
- Publication Details
- Pediatric Blood & Cancer Volume 72: Abstracts from the 57th Congress of the International Society of Paediatric Oncology (SIOP) October 20–23, 2025, Vol.72(S6), p.S448
- Conference
- 57th Congress of the International Society of Paediatric Oncology (SIOP), 57th (Amsterdam, The Netherlands, 20/10/2025–23/10/2025)
- Publisher
- Wiley Periodicals LLC.
- Identifiers
- 991013375761602368
- Copyright
- © 2025 Wiley Periodicals LLC.
- Academic Unit
- Human Sciences; Faculty of Health
- Language
- English
- Resource Type
- Abstract